Data sharing - Lausanne Open Data Meetup

What

Lausanne Open Data Meetup Special Edition

Presented by BSNL / ISCB-RCG Switzerland and Hackuarium
(This event will be in English)

When

• Thursday 5th November 2015, 7pm
• Practical information: see Open Hackuarium
• Please register here for this event.

Organisers

• Leonor Rib
• Jonathan Sobel

Topics

Biomedical data, medical data transition, ethics and security

Speakers

We are honored to discuss these topics with four important actors in the field that confirmed their participation:

• Jacques Beckmann (Head of Clinical Bioinformatics, SIB)

• Christine Currat (Executive director of the Swiss biobanking platform)

• Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE)

• Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV)

Target audience

Students, Politicians, Doctors, Data Scientists, Citizens.

Questions to ask/have answers for

During the round table we will go through the following questions:

• What can personalized medicine offer?
• What ethics problematic are at stake with personal medical data and how can the law protect patients?
• What is the current state of the infrastructure for these data and the existing tools for researchers?
• How to manage these data and ensure confidentiality, but to allow access to researchers?
• How much investment is needed today to support this data tsunami?
• What is the need in medical data literacy for its potential users?
• How many trained people do we need in the area?
• Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio?